Contact information will not be shared with anyone or used for any other purpose. Chiari malformation-Type 1 (CM) is the most common variant of a well-defined complex of cranial and neurological alterationsthe majority of which are congenital in naturetypically affecting the region of the cerebellum and often impacting the brainstem and upper portions of the spinal cord (Massimi, Peppucci, Peraio, & Di Rocco, 2011. NOTE that we send a maximum of 25 copies at a time. the group without Chiari II was 94.5 - close to the general population average score of 100 - however, the average score of the group with Chiari II was much lower at 72.6. If you diagnose and/or treat Chiari patients and would like literature sent to you ,fill out and email the Patient Literature Request Form to your name, address, specialty, and how many Chiari patients you see per year. Join us for our annual Conquer Chiari Walk Across America this September Register. We do ask that if you cut and paste a portion of the document for a different use, please acknowledge the source, by including our web address.Īs part of its mission to improve the experiences and outcomes of Chiari patients, Conquer Chiari makes available medically reviewed literature for qualified physicians to distribute to both new and existing patients. Conquer Chiari is the Largest non-profit Funder of Chiari Research. You may email them or print them out and use them freely. The sheets can be used to educate anyone interested in learning more about the conditions, or to give medical professionals who are not familiar with CM/SM something they can look at.
Foundation, Conquer Chiari, and others) to enlarge the scope of research to. through 2014, conquer chiari has funded nearly 2.3 million in research projects. The information is in bullet fashion and is not intended to be comprehensive, but rather to give a good overview. Chiari I patients compared to healthy volunteers. c & s patient education foundation 20-0904691 x the organization is dedicated to improving the experiences and. They cover the basics of the conditions, the symptoms, diagnosis, surgery, and what to expect. The C & S Patient Education Foundation is a non-profit, voluntary organization whose mission is to improve the experiences and outcomes. The Patient Education Sheets are one-page documents intended to answer the most common questions someone has when they are first diagnosed.
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